Deaf-Blind

The word “deaf-blind” may seem as if a person cannot hear or see at all. The term actually describes a person who has some degree of loss in both vision and hearing. The amount of loss in either vision or hearing will vary from person to person.   The combination of losses limits access to auditory and visual information.  This can severely limit an individual’s natural opportunities to learn and communicate with others.

How does someone become deaf-blind?

About 50 percent of people in the deaf-blind community have Usher Syndrome.  This is a genetic condition where a person is born deaf or hard of hearing, and loses his or her vision later.   Other common causes include birth trauma, optic nerve issues, accident/ injury, and CHARGE syndrome .

What help is available?

The Michigan Department of Education Low Incidence Outreach (MDE-LIO)  is a valuable resource for families.  MDE-LIO provides technical assistance and resources to enable local service providers to serve and improve the quality of education for students with a visual impairment or those who are deaf and/or hard of hearing including those with multiple impairments. Help available includes:

How do students who are deaf-blind communicate?

Deaf-blind people have many different ways of communication. The methods they use vary, depending on the causes of their combined vision and hearing loss, their backgrounds, and their education.  Check out the American Association of the Deaf-Blind for specifics.

What do I need to think about for the IEP?

Michigan has a specific eligibility eligibility-deaf blind.  There are many supports and services that a student with deaf-blindness may need to be successful.  Accommodations and modifications are part of the IEP process, and there are specific.  Visit our website for more info on the IEP process.

Is there some technology that can help my student learn?

Assistive technology is a related service listed in IDEA.  Technology is a key to leveling the playing field for individuals with disabilities.  Check out the TechMatrix for suggestions for finding educational and assistive technology products for students with disabilities. Learn more on our Assistive Technology webpage.

Where can I find support?

Families can find support through the DeafBlind Central Family Support.

Deaf-Blind Resources– from the Michigan Alliance for Families Webinar Series

What other organizations focus on deaf-blindness?

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